Primary Biliary Cholangitis Insights

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Exciting News!
HealthSpotlight is now AllMyHealth
Wondering why we have a brand new look? We have exciting news - HealthSpotlight has merged with and rebranded as AllMyHealth.

Our shared commitment to supporting rare disease communities with trusted resources and advocacy remains as strong as ever - now under a unified name that reflects our patient-first values.

We collaborate with patient support groups to create advocacy materials and amplify community news and events.

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Top Stories

Latest Research

In their review, Filipovic et al. (2025) delve into the complex nature of autoimmune liver diseases, including primary biliary cholangitis (PBC). They highlight that despite significant research, the exact causes of these diseases remain somewhat mysterious. The article emphasizes the diversity of these conditions, which can sometimes appear together as overlapping syndromes, making diagnosis and treatment more challenging.

The authors also discuss current and emerging treatments, suggesting that understanding the molecular mechanisms at play is crucial for developing more effective therapies. While the review does not provide new experimental data, it consolidates existing knowledge on the molecular underpinnings of PBC and related disorders, offering insights into potential avenues for future research and therapeutic strategies.

Community News

PBC FoundationPBC FoundationFeb 23, 2025

In the lead up to #RareDiseaseDay on Friday, you will be hearing from the PBC Foundation team this week about why they are supporting rare disease day. Today, we are hearing from Jo:

My name is Jo and I am Patient Insights Manager at the PBC Foundation.

I am supporting rare disease day to raise awareness of rare disease generally and to highlight that the effect of rare disease may be more than you can imagine:

🟣There are more than 6,000 identified rare diseases

🟣There are 300,000 million people living with a rare disease worldwide

🟣The average time to diagnosis of a rare disease is 5 years

🟣 Did you know that PBC affects nine women to every one man?

#RareDiseaseDay#liver#autoimmune#pbc#PrimaryBiliaryCholangitis

Rare Disease Day

PBC FoundationPBC FoundationFeb 24, 2025

In the lead up to #RareDiseaseDay on Friday, you will be hearing from the PBC Foundation team this week about why they are supporting rare disease day. Today, we are hearing from Mo, our Head of Patient Services.

#RareDiseaseDay#liver#autoimmune#pbc#PrimaryBiliaryCholangitis

PBC FoundationPBC FoundationFeb 27, 2025

Today, Robert, CEO of the PBC Foundation, talks about how rare disease affects more people than you can imagine ahead of #RareDiseaseDay tomorrow - with the help of an entire conference!

#RareDiseaseDay#liver#autoimmune#pbc#PrimaryBiliaryCholangitis

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