Primary Biliary Cholangitis Insights

Scotland's NHS Covers Iqirvo for PBC Patients

April 16, 2025 • Estimated Reading Time: 1 minute

Latest Research

A recent study explores the prevalence and geographic distribution of primary biliary cholangitis in the United States. It likely uses new data capture methods to provide updated insights into the disease's prevalence.

The study focuses on real-world data to refine understanding across different regions and healthcare settings, aiming to improve patient care and outcomes. It also examines how healthcare providers influence disease recognition and treatment. This comprehensive analysis enhances our understanding of primary biliary cholangitis, potentially leading to better management strategies (Levy et al., 2025).

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

A Study of the Pharmacokinetics and Safety of CS0159 in Subjects With Hepatic Injury

A Study to Evaluate Efficacy and Safety of an Investigational Drug Named Volixibat in Patients With Itching Caused by Primary Biliary Cholangitis

A Study to Evaluate Efficacy and Safety of an Investigational Drug Named Volixibat in Patients With Itching Caused by Primary Sclerosing Cholangitis (PSC)

Intended to Determine the Effects of Seladelpar on Normalization of Alkaline Phosphatase Levels in Subjects With Primary Biliary Cholangitis (PBC)

View the full list of clinical trials →

Community News

PBC FoundationApr 11, 2025

It's the fourth and final day of the International PBC Summit 2025 which is dedicated to patient advocacy groups.

This day provides the time and space for reflection, collaboration, and connectivity to agree where the patient advocacy groups can support tangible engagement plans to drive forward the priority areas identified earlier in the Summit.

This year we had more PAGs involved than ever, with a total of 22 different organisations, representing 18 countries, attending this year or supporting our efforts.

The hard work continues as we give everything we have to make the PBC journey easier, smoother and with better results.

PBC FoundationApr 10, 2025

Today was day 3 of the International PBC Summit 2025 and that means only one thing - the Lion's Den!

The Lion's Den is a day when our sponsors (industry partners) individually present to the assembled patient advocacy groups (pictured) and provides an invaluable opportunity for direct conversation.

The hard work continues as we give everything we have to make the PBC journey easier, smoother and with better results.

Thank you to our sponsors for your willingness to enter the Lion's Den!

PBC FoundationApr 09, 2025

Day 2 of the International PBC Summit 2025.

Multi-stakeholder breakout groups including patient advocacy groups, clinicians, specialist nurses, specialist pharmacists, and industry partners have worked hard giving everything we have to make the PBC journey easier, smoother and with better results.

Discussions included: scoping for opportunities; what is feasible?; engagement plans, what to do now and how; and collaborating to build capacity.